Andy McDowell

Andy is an Auckland-based poet. He was diagnosed with early-onset Parkinson’s in 2009, aged 44. His poem Smaller is well known in the Parkinson’s community after winning the video competition at the World Parkinson’s Congress in 2013. Andy wrote this poem to help his daughters understand the visible changes of Parkinson’s. You can watch the winning video of Smaller below.

Andy’s poem Will I? is a close encounter with DBS surgery. The poem expresses hope for transformation and improved quality of life, alongside uncertainty and fear. It vividly conveys the complexity of emotion that significant medical experiences bring and raises questions about risk and self-identity.

In Every Glance Andy uses evocative language to convey emotional struggle. This vivid poem prompts readers to reflect on the complexities of self-perception and the need for conversations about illness.

Smaller

My world got smaller

my handwriting

my voice

my walk

my spirit

my balance

the space in the world I take up

It crept up on me — this slowness did

in micro increments

(those are big words for small and slow)

until it arrived with a name

And then it became BIG

and scary

and I didn’t want it

But now I had a face

a reason for the smallness

and so it became what it is

I may be smaller, slower

but I’m still me

Will I?

Questions are buzzing
around in my head
As I lie here tonight 
In my hospital bed
 
Will I be more?
Will I be less?
It’s freaking me out
I have to confess
 
Will I be slow,
– still feel like lead,
My face a fixed mask,
With WIRES in my head?
 
Will I be better
or will I be worse?
Are the risks worth taking
to be free from this curse?
 
Will I wake up transformed?
Rebuild me they can 
Just like Steve Austin,
the six million dollar man.
 
Will it be worth the risk
I’ve considered all doubt 
One thing is for sure
Its too late to back out

Every glance

Each step shame and pain 
 
Every glance….. a lance 
 
The night, full of fright 
 
And morn, self scorn
 
Angry and sore, Now such a bore
 
My face a mask, Sleeping a task
 
Stumbling and mumbling, Fumbling and grumbling
 
Better above ground, Though – I’ve found
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